|Dry lips in recovery!|
When signing our consent prior to the surgery, the doctors made sure that we understood there were serious concerns that Will could have weakness on the right side of his body, as the area they were removing was very close to the motor strip in his brain. At the same time, they were optimistic that it would not be affected. Thankfully, immediately after surgery and before any temporary swelling could happen, Will had full motion and plenty of strength, proving that the motor strip was not impacted by the surgery. It actually took 4 of us to hold him down to keep him from pulling out his arterial line. He was so strong immediately after the surgery that he actually bent one of the immobilizers they had placed on his arms to keep him pulling out IV's. We are so happy to see him with a full range of motion, and also so determined and full of fight despite everything that has happened to him over the past week.
The doctors have been streaming in this morning, and the entire team is very impressed with what they are seeing. His strength and recovery so far have been astounding. The entire team seems very pleased with how the procedure went - there were no surprises and results were the best we could have hoped for. They are very optimistic that he will now be able to learn to talk and progress forward with his development.
Will's field of vision is almost certainly completely gone on the right half of both of his eyes, and we can definitely tell when standing on that side of his crib that he has lost visual field. He will have some adjustment to deal with over time, but nothing insurmountable.
|As long as I have my Mom, I'm OK|
Overall, we are exhausted, depleted, and a bit giddy with excitement and joy - but always with a measure of caution. We were told in November that surgery was a success, only to have our elation come crashing back to the ground in an instant. We are way too far along in this journey to think that can't happen again. Regardless, given all our little Buster has been through, it feels really good to feel hope and optimism for our little boy, and right now...we are going to rejoice in this moment.